Susan Hedstrom

Company: Foundation for Prader-Willi Research

Job title: Executive Director

Seminars:

The Role of Patient Advocacy Groups in Advancing the Development of Meaningful Treatments for Rare Disease Communities 9:00 am

In this presentation, we will share three critical steps for advocating for new treatments: Capturing and sharing the voice of the community Bringing together stakeholders for collaboration Developing a ‘research ready’ communityRead more

day: Day One