Charlene Son Rigby

Charlene Son Rigby

Company: RARE-X | STXBP1 Foundation

Job title: CEO | President & Founding Board Member

Seminars:

Live Q&A Session with Your Expert Speakers 4:30 pm

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day: Day One

Patient-Powered Approaches to Expand Enrolment & The Accessibility of Natural History Data 2:30 pm

• The need to build better natural history studies • How do we build natural history studies of each one of these diseases? How much information do you need over how long a period of time? • Innovative approaches to accelerate how data can be gathered and leveraged to create actionable insights into neurodevelopmental disorders…Read more

day: Day One

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