Charlene Son Rigby
Company: RARE-X | STXBP1 Foundation
Job title: CEO | President & Founding Board Member
Seminars:
Live Q&A Session with Your Expert Speakers 4:30 pm
day: Day One
Patient-Powered Approaches to Expand Enrolment & The Accessibility of Natural History Data 2:30 pm
• The need to build better natural history studies • How do we build natural history studies of each one of these diseases? How much information do you need over how long a period of time? • Innovative approaches to accelerate how data can be gathered and leveraged to create actionable insights into neurodevelopmental disorders…Read more
day: Day One